Checked into our APH apartment on the 4th Floor. Hannah’s first day of chemo is complete and after a very rocky start to our day, Hannah is finally medicated enough to be comfortable and not throwing up or in pain. She was given a very sweet gift recently and I packed it as a surprise that could be used as our ‘night light’(our own marquee sign). Thank you Corey Kopetz Gafnea Kate, Hyatt, and Tim Gafnea. All gifts we have received throughout this journey are cherished and we are so grateful; however, watching her spell this touched my heart and made me cry today!
Hannah is finally feeling the effects of her blood transfusion and was able to enjoy her day. We spent most of it it; as she loves to do, outside. Under shade, but outside.
With that said, Hannah disclosed a dream to a dear friend of mine about a month ago. What I didn’t realize was her dream had far deeper meaning than what she initially disclosed. Hannah dreamed of an outside area/landscaped Fire pit area that she could pray, study, snuggle and exist without needles or doctors!
Hannah, in our private time, also shared to me, that she wanted a place that I could sit and think of her should anything ever happen to her. Although I pray that this is not her time, her thought beyond this moment and to think of me and my ability to grieve and cope is beyond her years!
To my surprise, my dear friend turned this dream into a mission of God! She started a GoFundMe to finance this project and make this small (I think it’s huge) dream into reality.
To my complete amazement, the gofundme grew, and local companies with God-given talents and a community with philanthropic hearts started turning this dream/mission into our reality.
First Green Roots Landscape and Steve, Candice Stanaland and family said a simple YES and began the design and started the donations. Titon construction came in and turned this place upside down and readied this property for this journey. Alliance Pavers quickly stepped in and donated pavers and man power. Ultimate Image (Fred Heldreth) quickly swooped in and offered their irrigation and sod expertise and resources! Frank from said he would build a pergola and finally, Mark Laverty Landscape, said…..’you need plants, I have plants!’ With the money raised and the generous donations thousands of dollars have been donated to us and money has been raised, all of which have exceed my expectations!
Above donations, a work Day was organized that included neighbors, friends and strangers! All to fulfill a dream of an eleven year old cancer warrior.
What people don’t realize is that Hannah opens the doors daily to see progress. What you don’t know is that TODAY Hannah happily assisted, sat and cried about her sooner than later until the dream comes true. What you don’t know, is that Hannah is excited for her upcoming admission to come home to progress in her new space!
What all of you do know is that Hannah and I are in the fight of her life and I AM NOT GIVING UP! To be able to sit under a sun protected pergola or have dinner next to a fire regardless of Florida’s heat, or the responsibility to upkeep a yard that makes my child comfortable to pray and talk to God…..is priceless! I so love to see and hear of her faith!
Please share, donate below or let me know of anyone willing to help as this is not small, but it is big because the heart behind it is MASSIVE!
In my book, I need a place for her to fight for as long as it takes to get rid of this life-threatening, three time presenting devastating cancer!
Hannah update – Well we avoided an admission, but arrived here at the hospital with very little time to spare. Hemoglobin is very low, along with platelets and red blood cells. Hannah has been asleep since we arrived and hopefully will feel rejuvenated by the end of the day and tomorrow. This girl and her persistence not to go to the hospital unless it is scheduled is incredible. She is stronger than I have ever been and beyond fierce!
Leg pains, nausea, exhaustion, and medications that kept Hannah completely comatose did not keep her down! This girl-powered through pain in order to get home to her safe place! The emotions are heightened and with every admission, her ability to trust the process gets more intense. What I know…..this momma will not back down from this fight and she will win!
Praying for all our friends spring breaking and getting away! Tonight, our spring break is getting out of the hospital and ready to get caught up on school work!
We will celebrate when this fight is over! Hannah wants a trip to the keys…..I will make that happen!
Be safe my prayer warriors! We miss you and want you back safe! Love you all. So thankful to have our boy home after all our friends rallied to help us! Thank you Jodi L. Foster Lisa Rodriguez and Michele Webster Pope for being there!
We have been admitted to APH and we have already completed day 1 of 3 of this round!!! Praying for an event free, drama free round! Eager to go enjoy our days with radiation!
Still have yet to wrap my head around being the family on the floor that has been fighting the cancer battle that longest! Not an award I ever wanted.
So good news and bad…..we were all packed and ready for the hospital to be admitted but Hannah is having so much bone and skin pain that Dr. Giusti wants to wait until Friday and let her rest before knocking her down with chemo. That’s the bad news.
On top of that decision, based on the location of her pain, we had a STAT X-ray and ultrasound. The results show a clear chest X-ray, no lesions or NED in the kidney and the CLOT is gone!
So we may have our schedule backed up, but looks as if next to this pain, Hannah is doing phenomenal and the course of treatment we are on is working it’s magic!
Prayers needed for the pain that she currently faces as it is causing her to throw up and not allowing her body to rest!!!